Never Ending Battle.

Well the Tvs have been out all day, no signal apparently. Which makes this place even more...

Thu, 02 Aug 2012 16:19:02 -0400

Well the Tvs have been out all day, no signal apparently. Which makes this place even more unbearable, so having to find ways to entertain myself and writting this entry is one of them.

Oh my physio progress is slightly better today as i was actually moving instead of just standing. Thing is though my legs still cant hold my weight which is not great in order for me to walk again. I didnt realise just how much this surgery would affect me. But its done now and ive got to move forward. The aim is to be out before September, my birthday. Cant be 21 in here.

So the start to my day was a blood test that dragged out for a while, it took 3 attempts to get any...

Mon, 30 Jul 2012 10:56:10 -0400

So the start to my day was a blood test that dragged out for a while, it took 3 attempts to get any blood. That definitely woke me up. Then as i was awake they thought they’d get started on my nebs and other medication. As i finished those i thought i’d have a break but no the doc walks in then, we had a quick chat and off she went. So now i think finally some peace, right? Wrong! Physios appear out of no where! So i get that done and out of the way with. Then i had my wash and got dressed, then shuffled into the chair where i have been here for nearly 4 hours. Arse is getting numb time to get back to bed.

Oh and yeah, the doc said home friday, i was like i dont think so i cant even walk yet. Think she is off her head a bit.

Had the dresing taken off my scar today, looks scabby as fuck on one side. Strange how its just the...

Sun, 29 Jul 2012 11:35:00 -0400

Had the dresing taken off my scar today, looks scabby as fuck on one side. Strange how its just the one side. But the surgeon looked at it and says its fine, so thats okay. Although i can see some stitches that will be coming out soon, thats going to be fun i can tell you.

Weather has been shit today, dark, rain and thunder but no lighting. But at least the parents still visited which was nice to have some company, time passes faster too with people around.

Hmm, now for something to do to relief this boredom.

I actually wore proper clothes today, not just a gown! It feels so strange after sporting the gown...

Sat, 28 Jul 2012 18:13:16 -0400

I actually wore proper clothes today, not just a gown! It feels so strange after sporting the gown for about 7 weeks.

Other than that i have nothing more to say apart from i’m shitting myself about having these staples taken out my chest soon.

Oh and before i go, i thought the olympic opening ceremony was good. Didnt top Bejing, but i dont think anyone ever will. Anyway well done Danny Boyle!

Can’t wait to get out of here. I have plans that need to be done, people to see and goals to...

Fri, 27 Jul 2012 09:17:40 -0400

Can’t wait to get out of here. I have plans that need to be done, people to see and goals to accomplish. Oh yeah and overdose on takeaways lol.

Oh no they have changed their minds again.

Thu, 26 Jul 2012 12:04:02 -0400

Oh no they have changed their minds again.

Great so all my lines have been taken out and then they decide they want to put fluid in me. Are you...

Thu, 26 Jul 2012 12:01:59 -0400

Great so all my lines have been taken out and then they decide they want to put fluid in me. Are you stupid?! Now I need another line put in. Absolutely annoyed.

Actually had something to eat today. Nothing huge just ice cream and a yogurt. But it felt good...

Wed, 25 Jul 2012 13:28:40 -0400

Actually had something to eat today. Nothing huge just ice cream and a yogurt. But it felt good after nearly seven weeks of not eating.

Hi, I wanted to introduce myself. I'm Emily. I had a heart transplant in 2006. I see your recovery is taking a little longer. I had a few bumps too. If you ever want to talk my box is always open! There is a big transplant community on here as well! :)

Wed, 25 Jul 2012 03:46:15 -0400

Hey Emily, im Richard. Im glad to hear that your transplant was successful.
Yeah I’ve had a few bumps along the way but now im hoping things have turned a corner.
I think it would be good to keep in touch :)

Hi there, I seen your post on the Cystic Fibrosis tag. I have it too, and I just wanted to say congrats on your lung transplant (though it seems it's been giving you a hassle) but despite that, I really hope you start to feel better soon so that you can go home :) Take care, keep fighting<3

Tue, 24 Jul 2012 07:40:17 -0400

Thanks for the support :)
I hope things pick up too.
Hope you’re feeling good too.

Up at 6 for a wash and to get ready for a bronc which wasn’t till 10 anyway. So that’s...

Tue, 24 Jul 2012 07:11:31 -0400

Up at 6 for a wash and to get ready for a bronc which wasn’t till 10 anyway. So that’s been done now.
Scar is giving me a bit of pain and ache but I have painkillers on the way.
Best of all I have visitors today!

Pain pain go away

Mon, 23 Jul 2012 12:21:34 -0400

Pain pain go away

Why is my progress so slow. I know most people my age who have had a transplant are home by now....

Mon, 23 Jul 2012 06:56:38 -0400

Why is my progress so slow. I know most people my age who have had a transplant are home by now. This sucks. It’s been 6 weeks now and I still no where near home.

Sick of not being able to eat. Starving.

Mon, 23 Jul 2012 06:51:25 -0400

Sick of not being able to eat. Starving.

Had a better nights sleep but still not sleeping how I’d like. I just can’t relax and...

Sun, 22 Jul 2012 01:59:34 -0400

Had a better nights sleep but still not sleeping how I’d like. I just can’t relax and keep calm, always on edge it seems waiting for something to go wrong. Been told all the numbers are good on the machines but I don’t feel it. Maybe I’m expecting too much? I can’t be people have usually left here by now and I haven’t.

So last night wasn’t the best of nights for me. My breathing went all funny with the...

Sat, 21 Jul 2012 04:24:45 -0400

So last night wasn’t the best of nights for me. My breathing went all funny with the ventilator on, it was easier to breathe with it off. Then my chest infection decided then blocking my air ways would be cool. It’s really not. So cant wait to get better, well I hope I get better.

Just been moved from itu and now on a transplant ward. But I don’t like it here, they...

Fri, 20 Jul 2012 12:49:21 -0400

Just been moved from itu and now on a transplant ward. But I don’t like it here, they don’t know what they are meant to be doing with me by the look of things and it’s making me nervous. I want to go back to the other room where people know what’s going on. Definitely a downer day today.

Rehab is horrible. Such hard work just to do the little things. Plus i am being moved off itu today...

Fri, 20 Jul 2012 06:40:14 -0400

Rehab is horrible. Such hard work just to do the little things.
Plus i am being moved off itu today and put on a ward. Not so sure about that though. I’ll be on my own most the time.

I got to go outside the other day for about half an hour. Nice...

Thu, 19 Jul 2012 14:07:48 -0400

I got to go outside the other day for about half an hour. Nice to feel some fresh air.

I hate injections with a passion. This stung like mad, gets worse each day because of all the...

Thu, 19 Jul 2012 14:01:52 -0400

I hate injections with a passion. This stung like mad, gets worse each day because of all the bruises.